Yesterday, I was asked to show you a picture of ways I cope with CRPS/RSD pain. This photo, shows you the majority of ways I deal with my pain. I must confess, however, I take a lead from one of my friends who is also a sufferer and taking this challenge on the facebook group. My apologies to you Lynsey, but I guess we both have similar ways of coping.
Laptop (top left)
The laptop signifies my writing and coding which help me to escape my pain. I have so far written two manuscripts which I edit in slow time . I’m also learning to code HTML and Java. It is my hope when I have finished this, I will turn into a freelancing business from home, thereby no longer having to stress myself out getting to work. I mainly write fantasy, which also helps in my escapism.
Buddhism (top right)
I was raised a Christian, but found that Buddhism spoke more to me than the teachings of the bible. It has helped me see this disease as nothing more than Karma and not luck, melovolance or anything else. I have also come to see my suffering as a good thing. This may sound strange, but in my view, if I have this disease, then that’s one less person who has to deal with it. Maybe this is somewhat foolish thinking (as I doubt that Karma takes into account the amount of disease to spread round, but it makes me feel a little happier).
Batman (middle right)
I have been a Batman fan since I was a young boy, collecting stickers to enter in a book. I have only recently rekindled my love for the capped crusader, and have been watching videos and films, reading comics and books and playing games and role play on Batman, which I find very escapist and soothing.
Kindle (and/or other books)
Any other kind of reading, whether it be general fiction, HTML or Coding books or self help books, I find very relaxing. Ever since I finished a book cover to cover for the first time at the age of 14, I’ve been hooked on reading. My favourite fiction author is Lee Child. I just love the character of Reacher (no, not the Tom Cruise version).
Tablets (mid centre)
The tablets quite clearly are my most regular coping technique as I take 11 ½ tablets a day spread over three occasions (and trust me, that’s low compared to some of my friends). I don’t appreciate the constant side effects that all these drugs give me, but I’d be worse off without them.
Earl Grey Tea (mid centre)
Earl Grey tea is my go to for relaxation tea. My other is Green Tea. I originally started drinking Earl Grey because it was Captain Jean Luke Picard’s drink in Star Trek: The Next Generation, which was one of my favourite programs as a kid. I find the smell instantly soothing as he often would have it as a refreshment when contemplating a difficult situation, or giving council to one of his officers.
Gaming (bottom left)
As I already said, I find gaming another great escape from my pain. Inside the world of gaming, I can explore deep and mysterious caves in Skyrim, or zoom round the streets of San Francisco in Driver or, better yet, jump off rooftops and swoop in on criminals and solve clues as The Worlds Best Detective (Batman). I think what I enjoy most is that in all these games, I’m not walking round Gotham with a stick or looking to see if the cave is accessibility friendly. I can walk again, without pain or sticks.
Walking Sticks (bottom)
Having just cursed them, my walking sticks are another coping mechanism. They are quite literally a crutch. If it were not for my sticks or my wheelchair, I would not be able to get round the flat. My leg often gives way, and the sticks help me to keep stabilised.
If it were not for all these things, along with the support of my family (mentioned in my previous post) my pist-CRPS/RSD life would be unbearable.